Neurofibromatosis Type 2 (NF2), which I have, currently has no cure. Research is happening in hopes of developing a cure but as always, research takes money 🙁 To give you a quick picture of what the medical route has to offer:
Watch and Wait: This is where I have been at but am not sure now how much longer that will last.
Surgery: Surgery in most cases means total deafness in both ears, very possible facial paralysis, and countless numbers of surgery with possible complications for each one. It’s not a pretty picture which is why I am happy I am working with a Doctor who is supportive of doing anything natural we can do as surgery should only be the last option once it has to be done.
If you feel led to make a difference for people with NF2 here is a link to donate whatever you feel led that will help make a difference in finding a cure for NF2.
I know these “please share this” fb post can get so annoying but as one who’s NF2 journey has taken a turn for the worse, you never know the difference you could make simply by sharing this post even if you aren’t called to give yourself.
As for me I am now on their registry list for any clinical trials and testing. Very few of you would be eligible to do that thank God 🙂 but you can still make a difference by giving!
Please share and make a difference!